Goodness, it has been a while!
At the end of the first week of school in August, Max was in the hospital with low oxygen levels from an upper respiratory infection. From then until a week ago, he was battling daily migraines. And yesterday we were back to the hospital for another viral respiratory infection. His migraines are starting to get under control, but now he's fighting off this cold. Thankfully he's able to get well at home with some oxygen, since his home is basically a hospital with piles of laundry, stacks of mail on the table, and dirty dishes in the sink.
On the days he's been able to sit through school, or get out for walks, he's been enjoying them. We're hoping he's feeling much better by next week so he can get back to school and therapy. He misses doing both of them.
So consider this post a catchup of the last couple of months...the good, the bad, and the rest of it.
|We have learned about the Posy Bed at the hospital...it was a game changer.|
|This is Max's preferred way of wearing oxygen, this was when the dr's decided he could go home. |
|He's been loving the early evening walks. |
|Sunsets are his favorite. |
|A month of migraines meant a lot of dark, quiet therapy sessions.|
|And lots of needing to be held and rocked until he would go to sleep. |
|On good days we got out to the Halloween store. |
|And the pumpkin patch.|
|He chose some great ones. |
|But he was not impressed with Daddy's silly monster choices.|
|He humored me for a fall leaf photo shoot. |
|And told me he was "furious" he had to go to the hospital again. |
|But today we're back home, with all the things to make him comfortable enough to get better! |
Thank you for following along, even when I forget to update! Our fingers are crossed for a better rest of the cold and flu season. It feels too early to be doing this already. I'm sure the next update will be when I have a 14 year old in a couple of weeks. Unbelievable.
Thank you for update - sad to hear it's been difficult... Fingers crossed for Halloween/bday at home and feeling better! My love to all, and a big hug to Max!
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