Wednesday, November 25, 2015

New chair...

Max got a new chair this week.  His recliner which he sits in most of the day broke from his hulkiness and the back wouldn't stay up anymore.  Since we bought it secondhand, we didn't have a warranty and had to bite the bullet and pay full price for one so we could get the warranty.  This lift chair has been the best seating arrangement we've ever had for him.'s not as worked in as his old chair was, so he's figuring out how to maneuver himself out of it in all new ways.

Today, he found a fun new trick. If he pushes and rolls at the same time he can get to his side.  He's not got quite enough coordination to go ahead and roll over, but if he gets it just right with a forceful kick, I imagine he could get here.

This means we can't leave his side...and I may be finding a way to remove some of the stuffing so he's not sitting so far forward in it.

Here he is in action!

Just look at his face!  Pure orneriness!  I kept telling him to be careful and not roll in his chair.  He got just to the side and then would stop and crack up.  This boy is going to give me a head full of white hair before I'm 40!  

Tuesday, November 3, 2015

12 Years old...

I should start by saying, if you don't like creepy crawlies, this post is not for you.  But...if you love Max's smile and seeing the things he likes buckle down and enjoy the picture journey through our incredible boy's 12th birthday. 

Max woke up ready for his party....but not quite ready to stay awake.  So, we let him rest while we got everything ready for his friends to show up. 

His teacher made him this shirt.  It says Turtle Max, and he wanted to wear it as soon as he opened it from her!  

He told me his cake was to have snakes and spiders on it.  I added a few frogs and lizards too.

 His friends needed frog eggs to go with their pizza.  

And a cucumber snake.  It looks cool, but none of the kids ate it.  I think they were all too excited for the reptiles to arrive. 

Max and his pals having some pizza and getting ready for the reptile party to begin. 

When I booked the party with Canyon Critters, I knew I was not going to be the biggest fan of the critters being around.  But, I also knew Max was going to love seeing them up close.  When I saw just how excited he was, I knew it was so worth it!  This is a ball python.  

This bearded dragon was not his favorite.  It was pretty spiky and he didn't like that as much.

 The tortoise was why I contacted them in the first place.  He brought two tortoises for Max, and taught us all a lot about the differences between turtles and tortoises.  This was a desert turtle from Africa.  It was a rescue and has a damaged shell.  He has had a 3D printed shell made to protect her shell.  She wears that when she plays with other tortoises.  She is in her teenage years, and only about half the size she will eventually be.

We learned the bumps on their shells were signs of malnutrition.  And that tortoises aren't supposed to have those tall cone like bumps on their shells.

This tortoise is from a jungle area, and is much smaller than the big tortoise.  But, he was much easier for Max to get to see up close.  

 Then came out Mr. Iguana...the boys all wanted a turn with it on their backs.  Max got a turn with him up close too. 

This is the one that makes everyone jump when I show the pictures.  Max likes the big spiders very much.  He didn't mind it crawling on him at all.  But, they are very fragile creatures and because Max moves so much we only let it be on him for a few seconds. 

And finally, what they were all waiting for.......this enormous albino Burmese python.  Oh, this thing was enormous.  And weighed in at about 60 pounds. 

Max loved her.  He wanted to give her kisses, but as soon as I saw that I asked the critter guy to take him off.  I could just see Max using his teeth to kiss and that monster wrapping up around him!

First Max wanted a picture with all of us.  Mom and sister were not having it, but Max and Dad were loving it. 

Present and cake time with friends got a lot of cool things, including two little African frogs to watch swim around.  

After his friends left, Max was ready for a costume change.  This year he told me he wanted to "wear shirts" for his costume.  He asked for his police officer shirt after his turtle Max shirt. 

Then he got some visitors.  First, his aunt Shauna and Uncle Jim came over and brought him a great long plush snake, he has named Snakey.  He also got a visit from his new friend Liz from Australia.  She brought the Koala, which is so soft and lovey too.

He wouldn't keep the birthday cake hat on for a photo.  He thought I was pretty silly for trying to make him wear it for a photo. 

He was so surprised to get a special visit from his pal B.  Since she started working for another clinic and he doesn't get to see her twice a week, he's really been missing her.  He was so happy to get a birthday visit from her, and to show her his new friend. 

Ince all the visitors left, it was time for the costumes to get on and get ready for tricks and treats. Max wore his Batman shirt, and even wanted to wear his bat ears! 

Then because it was so nice outside, he sat outside for a good portion of tricks and treats handing out candy.  It's almost never nice enough on Halloween for him to get to be outside that long.  And he loved it!

He had me go get his zombie gnome for extra spookiness. 

Since his birthday, he's been loving cuddling with Snakey and telling everyone about his awesome birthday.  

It's hard to believe he's in his last year in "kid years".  Next year I will have a teenager boy.  I can't even believe that!!  Here is to a wonderful year of being 12.  A year of learning, and laughing and loving.  

Friday, October 23, 2015

Turtle song...

Max has had a busy few days.  Yesterday he had a checkup with his neurologist.  I was afraid he would sleep through it since it was an early morning appointment, but he woke up as soon as his doctor came in the room.

We filled him in on how Max has been doing.  He reminded us it has been two years since Max's last seizure.  That is certainly an accomplishment, especially since we've been able to wean Max off of two of his seizure medicines in that time.  For Max's part, he got to share the song he wrote in music recently.  His doctor loved seeing the process of Max choosing the notes, and listening to how it turned out.

Max chose the notes with his feet, pushing them off the felt board until he got to the note he wanted.  He told Ms Laura which key the song needed to be in.  Which tempo, and when the notes needed to be high and low. 

Max's turtle song. 

Max also had a dentist check up this week.  It's a little more difficult to do a cleaning while he's awake, but Dr. Dave is always super patient with him and waits until Max is ready for him to get a look inside his mouth.

He's been busy reading stories with his teacher, as we're still waiting to get things sorted with his school.  It's been a frustrating start to the 6th grade, so it's been a lot of number card games, and books so far for Max his school year.

Before the rainy cold weather hit this week, we were able to get out for a few walks in the gorgeous fall weather.

In art therapy, he got down to work painting pumpkins.  It is just a little over a week until his Halloween birthday!

Thankfully the rain is clearing up and we're all set up for a gorgeous weekend!