|Max and Mom 11/2021|
Wednesday, December 1, 2021
Extubation Day 2021
Sunday, October 31, 2021
Max is 18!
I think the best way to come back to the blog after nearly two years away is to post about the boy who lived turning 18 years old today.
Max has been looking forward to being an "old man" for months, and it's finally here. He made plans on his AAC device, and gave us an entire week to pull it together.
Max has spent the entirety of 2020 and 2021 indoors, without visitors save for a few visits from his aunt and cousin, a pop in here and there through the window from his people (all his therapists and teacher had to stop coming for in home visits)
, and the few times he's gone to the hospital for appointments. He doesn't have any nursing coverage (since June), so it's been a lonely almost two years.
He had one request for his 18th birthday - he wanted to see all of his "own" people. He named off his teacher, nurse, therapists, aunt, uncle, and cousin as all of the people he wanted to come and see his scary house. He directed us on decorations, and said he wanted them all to come see his scary house and scream and say Happy Birthday!
He got phone calls from Pops and Great-Grandfather and Nanaw and heard messages from lots of other people. He will have some ice cream soon (he likes tiny bites of vanilla ice cream), and then hopefully have lots of dreams filled with visions of all his own people coming to visit him for his birthday.
Happy 18th birthday, Monster Max. I can't wait to see how adulthood looks like for you, because you had such an incredible, one of a kind childhood!
Wednesday, August 21, 2019
A reminder of grades 1-9.
And now, Grade 10. He's such a funny guy, and so sharp. He wanted to wear his dad's t-shirt for his first day of school. And wanted to write his sign on blue paper and red marker.
He wants to know if his new teacher can get his friends at school say "hello", and wants to know what her favorite holiday is. He also wants to know if she drives a fast car!
His biggest interests right now are listening to The Beatles, and fastest fast cars. It's been a terribly hot summer, but he's enjoying going on evening strolls when it's cooler.
He's hoping for a great school-year and of course we want that for him too. Here he goes...Sophomore Max.