Monday, January 19, 2015

Rocket Max...

Can you believe I have two posts for one day?  We ended our day off of school and therapy with a rocket launch.  We live backed up to open space so we're able to set it off without too many problems...except for wind direction!


Since school was out, Max's friends joined us.  We didn't tell Max we were going to set off his rocket because the wind has been messing with our plans the past couple of days and we didn't want him to be disappointed if we had to cancel. When we walked outside and all his friends were there he was so excited!


They were a huge help in getting the rocket ready. 




And helpful in taking video too!


We had a few problems with the fuses, but once the dads sorted it out, we were ready to go. 


Steve made a line in the dirt they had to stand behind. 


Then they got ready to run after the rocket. 


I took a video, but lost the rocket once it took off!  


 Good things his friends were on it, they were able to show Max their videos a few times.  Much better than my attempt!

The rocket's parachute didn't open all the way and landed in a tree in the neighborhood.  The kids went running after it, with a couple of the grown-ups in tow.  Steve ended up having to get the Christmas light hanger to get the rocket out.  We'll try to set it off again when it's not so windy!  Maybe in the snow next time. 

Max's Martin Luther King, Jr Day 2015...



Being Martin Luther King Day, Max has been learning more about his hero MLK, and starting into learning more about the Civil Rights Movement in general.  

Here he is listening to one of his speeches. 

We had visited the MLK memorial in Denver's City Park before, but it was when he was still quite young.  With his continued interest in all things MLK, we knew he would enjoy a visit to the park to see our city's memorial. 


We've been having beautiful weather and it was a perfect day at the park.  Max wanted his photo beside the statue. 


He's very happily posing next to the words "I Have A Dream."

We read to him the explanation of the statue.  Martin Luther King, Jr. is standing on the shoulders of other important people, who inspired his fight for rights for all people. There is Mahatma Gandhi, Rosa Parks, Sojourner Truth, and Frederick Douglas.



Surrounding the statue, granite historic panel elements highlight historic dates and facts, as well as Dr. King's quotations on: Slavery, The Civil Rights Struggle, Justice and Living The Dream.









 There is a recorded explanation of everyone represented on the statue, along with important African American leaders in Denver's history that Max enjoyed listening to.


He wanted another picture with Martin Luther King, Jr. before we left.  We still find it so interesting, the connection Max feels to MLK.  He is definitely an important figure to him. 






Thursday, January 15, 2015

Back to it...

Max took last week to get the rest of the way better.  He had a bit of a cough that would get him choked up, and needed oxygen for a few days.  But, really the thing that has been lingering for him is he has been sleeeeepy!  I don't think he's been out of bed last week or this week before 10:00, and has slept all night every night.  Here he is taking a snooze on the floor with his super hero blanket from one of his buddies.

Last week was also full of a lot of trouble getting one of Max's medicines refilled.  Max has to take testosterone injections each month because he doesn't produce it himself any more.  Once we got the doctor situation sorted, but gave him the injection and next came the crying, and laughing, and raging and sweating.  We've been told he shouldn't have these sorts of reactions to it.......but I beg to differ. I've been taking notes, photos and videos to show how it is bothering him.  Here he is with beads of sweat on his brow...it was 25 degrees outside, 65 degrees in the house.  His shirt and quilt were soaking wet from seating, and he had sweat rolling down his face.  He only does this a few days after his testosterone shot every month.  


This weekend was actually nice, so we decided to try to get Max out in the sunshine.  He wanted to go see the trains and get ice cream at the train station.  Max gets little tastes of things, and sometimes he just likes knowing that he could have a bite if he wanted one, since he takes all his nutrition through his gtube.  


 On Monday, school started back up for Max.  Since next week is Martin Luther King Day, Max has been learning more about his favorite historical hero.  His teacher found a new book they haven't read yet and he answered all the questions right.  He told her he wants to go to Washington D.C. to see the memorial.  He also said again this year that he has an idea...his own way of saying "I Have A Dream."  We are working on him telling us what his Idea is.


In music, he and Ms. Laura are working on a song about Dr. King.  Max was happy to be strumming and singing again.  He also was working hard on his piano playing, but I didn't get any photos of that.   

Max and B have been working on their next project together in Speech therapy.  He is writing a new book about his people.  Max always enjoys talking about the people in his life, and he's compiling a list of some of his favorite people to talk about.  Today, he said he wanted to write about Officers, and how he would like them to come play with him.  He also told us earlier in the week that we missed that he wanted officers for Christmas.  


His Daddy has been gone all week for a conference, so he's excited to have him back.  Max thinks we will have to get out for a visit to his favorite park in the warmer weather...I agree with him!  We're definitely ready to enjoy some warmth and sunshine!