Wednesday, September 5, 2018

High School Lessons...

This week in school, Max started working on some of the same work his classmates are working on.  Since it was a holiday week, he didn't have school on Monday.  His teacher had a list to go through with Max about his work.  But he said, "first king dream yes."  I told him earlier that morning that it was the 55th anniversary of the "I Have A Dream" speech by MLK.

So to start things off right, he watched the video of the speech with his teacher.

He always has something to say when he listens to this speech.  Today it was simply, "greatness of a man who was a hero."

 After the video, they moved on to learning about seeds. Max thought learning about plants again was "just okay" since he's been learning about the parts of a plant since first grade.  But, he got to do some new things and really this lesson is focusing on the seeds.

Then his teacher told him about the forensic science class he will be in this year. When she asked what he thought about that he said, "yes my daddy can do it all."

She said maybe daddy can help him with his work for forensic science and he said "of course I know how to do it to."

They moved on next to Language Arts.  He made an autobiography last week in school (I'll share pictures in another post) and his class will get to see his finished product this week and then they will send copies of their books too. The next thing their working on is a book study of a pretty special book to Max. 

His teacher asked if he could guess it. It has a little boy, who is a king, and he goes to a land far away from his home, and meets some Wild Things.

Of course he knew it.

"book on...Mary my name...we have...max" It was like he was trying to get it all out as quickly as he could with his talker because he knew what the answer was!

Since he has his own copy, he wanted her to read it.

Max, The King of The Wild Things, roaring his terrible roar while she was reading to him.

While she was reading, I stopped to fill up my water.  I hear him say from the other room, "birthday party of me" . I popped back into the school room and said, "Birthday party?  I thought you wanted to have a Batman birthday party at the zoo?"  He said, "I very happy with my birthday party is max wild thing wild zoo"....well, alright.  He only turns 15 once, so let's do what he wants to do!

I asked did he want to still do Batman too and he answered with "nope." But he does want "eating the cake"

And a birthday present.  He's been stuck on this birthday present for a couple of months now. 

"Birthday present fast car." 

His teacher said what would you name your fast car? He said "Jack fe are e" ... that's Jack Ferrari...he's obsessed with yellow Ferraris right now, and for some reason thinks he will be able to have one for his birthday.  If only they grew on trees!  But if anyone has a spare one they want to give to Max for his birthday, hook us up!

He also said he wants to eat pizza on his birthday. It really is nice he plans it all out for me!

After school he wanted to relax and watch the video of Where The Wild Things Are.  Not the movie, just the video of someone reading the book set to music on Amazon Prime.  He watched it 6 times and was so happy for it. 

I never thought I would see the day where he didn't want to be Batman for Halloween...but maybe he will still figure in Batman into his big day. He just wants to add in his beginnings too.  Now...where will I find a wolf suit and a crown for a 15 year old Max?


Max's school year is getting off to a good start. 

While his homebound teacher was getting curriculum from the school, they spent the first two weeks of school working on a lesson about apples.

Max watched some videos on apples and read books, but the funnest part was walking to the little orchard in our neighborhood and picking apples and making applesauce with them.

It was a little toasty, but we took a field trip and walked over to check out the different types of trees in the park.

He picked from five different trees and brought them home.

They read a book about going apple picking, at the end of the story the kids made an apple pie.  This gave Max an idea.
"...please yum eat."

He and his teacher decided to cook with the apples they picked too!

They decided to make applesauce! I bought a few apples to supplement, but Max only wanted to use his apples.  His teacher suggested they could read another book about apples, but Max was ready to cook. "We should do it now period. peel apple now"

While she was peeling his apples, she told him the steps to making the applesauce for him to spell out.

While she was peeling and cutting the apples, Max was chatting with us.  He asked his nurse Rachel if she thought it was cool, and asked her to turn on some soft music. Mrs. B. asked him how many more apples did she have to peel since she had already peeled two. 

He said "3 you don't know how many apples." (Teenager attitude?)

Then he said, "Can I ask you something? How many you want eat?" She said she would eat one apple and asked how many did Max want to eat.  "All of course."  Then he told us it was his first time to do it.  It was his first time to make applesauce, but I don't think he remembers he used to eat applesauce a lot when he ate by mouth.

He got to smell the apples.  And the lemon that went into the recipe so they didn't turn brown.

That got his taste buds going.  He was ready to try it!


But first they had to cook the apples. 

After the apples were cooked, they went into the food processor that was hooked up to a plug in machine that Max's switch plugs into so he can control it.

The final product, applesauce made by Max.

He got to smell it and see it up close.

But he really wanted to taste it. As a reminder, Max does not eat much of anything by mouth.  He takes tastes but he's not able to control it all in his mouth to get enough for growing.  Feeding Max was always a struggle before he got his g-tube.  Now it's just for fun.

He thought it tasted yum! And then he called his dog George over to try a bite. He thought that was really funny!

Don't worry, they didn't share a spoon!

It was a lot of fun for Max to get to pick his apples from the tree, and then make them into something he could enjoy.

Tuesday, August 21, 2018

9th Grade...

Summer has come and gone and now it's time for another milestone in the life of Max. 

Today, Max started high school. 

I've had all summer (most of which Max was feeling poorly, again) to consider that my baby boy was going to be starting high school.  But it didn't hit me until today just what a really big huge incredible deal it is that he is in high school.

It isn't ever lost on us how special it is that he made it another year.  I'd be lying if I said I was certain we would make it to this day.  He's still the boy who defies all odds and has now made it to his first day of 9th grade.

He was so ready for school today that he sat in his chair and talked with his teacher for two straight hours.  I don't know that we could stitch together two hours a week last year for most of his school year.

Max picked out his first day of high school shirt and was excited to wear it this morning.

Last year was the year of the lion, and the year before that was sea turtles.  This year ... he's all about FAST CARS!

He wanted to wear a yellow Ferrari shirt for his first day of high school. 

After catching up with each other, Max and his teacher got right to work on his first high school project. He's writing a short autobiography for his classmates to learn more about him. 

He answered some of the letters his new classmates sent him.  There were a lot of questions about what he likes to do, and how many pets he has, and what is his favorite animal. 

He greeted them all with "Hey, what's up? Long time no see!" In answer to what did he do this summer - "Fun playing. For a little while I was sick."

When his teacher asked him about high school he said, "hard and boy people have been able to go to some time high school. "  We both told him we were sorry he was feeling embarrassed, but all the 9th graders are starting something new and they probably have been feeling the same way.  

He said middle school was "awful boredom. Important for me to go on to high school. at last fun!"

His teacher read him a first day of school book and they visited some more before Max let her know he wanted to do some more work. He wanted to make a high school picture.  So they looked up his new school's emblem and he made that as his first piece of art for the new school year. 

Max is ready for the new adventure!  Hopefully high school is all he thinks it will be!