Saturday, August 22, 2015

Therapy celebrations...

Max had a special couple of therapy days in the past couple of weeks.  His speech therapist, Brittany, is on to new adventures.  While we're so sad that she won't be here to chat with Max every week, we'll still be close because she's really turned out to be a great friend and is on our board for our non-profit.

For their last day, Max wanted to have a picnic at Whole Foods together.

When B went to get coffee for them, he said "Can I have a turn?"  He loves his coffee time with Brittany!  He wanted to wear the shirt he tie dyed with Brittany for their special day.  

We are meeting a new speech therapist next week and hope the transition will be a quick one.   He tends to latch on to his therapists and doesn't like change too much.  

This week was also a special anniversary, 5 years with his music therapist, Laura.  Max had the idea that she needed a present to celebrate, so he got her a little necklace with a heart of gold on a thread. When the thread breaks her wish comes true.  The heart of gold reference is because of their song they sing together, Heart Of Gold.  Each time he hears it he says, "WaaaaahWuuuuuh!" She says he has a heart of gold, but we know she does too. 

To celebrate Laura brought streamers and stickers for Max.  They listened to some of the recordings they've made with each other over the past five years, and of course played music and sang together.  

Max's first friends in his life were his therapists.  They are with him every week, and have been through all the ups and downs in life.  But just like in life, they will come in and out of his life.  We're so grateful for the work they do and continue to do.  It is a huge part of what makes Max's life so great.  

Thursday, August 20, 2015

Travel by train...

School has started for Max's pals and his sister. We are still waiting for class assignments and for his new teacher to be brought p to speed on Max this year before he starts.  So, we're getting a few more days of summer while Daddy is back to work and Abbey is at school.  This summer was definitely focused on things not vacation related, so we're just looking forward to the cooler weather to come and the start of a new school year for both the kids.

Max got to go to the train station, one of his favorite places to go in Denver.  He is always hopeful he will see a train, but we usually just miss them coming in or leaving.  The other night we went down after work and had dinner at the great little Chinese restaurant Zoe Ma Ma. It's accessible with Max's chair, and there is plenty of seating away from the crowd of the restaurant.  They always have the big glass wall windows open so it never feels stuffy in there.  We like to sit outside when the weather is nice and watch the people coming and going at the station.  At the end of our meal I noticed people were lining up on the platform.  We walked Max over to see what they were waiting for and were greeted with the arrival of the San Francisco to Chicago train.

Of course, we had to go check it out up close now that he was finally getting to see a real train!

When we got to the end of the accessible area a transit officer offered to take Max the rest of the way past the restricted area so he could meet the engineer and see the front of the train.  

It was a fun little end of summer treat for him to get to enjoy.  As we were walking back to the station, the trainmaster stopped and asked if Max was enjoying the train and if he was coming or going.  We told him we live here and hadn't ever got to see a train before.   We would like to take him on a train but just didn't know how accessible it is.  So, the trainmaster took Steve on the train to show him the accessible room.  Steve thinks Max would be able to get on the train and in the room with us in there with him.   Now where would we go?  At least we've got such a fun place to start.  

Thursday, August 13, 2015


Today was Max's first day back in his expressive therapies in about a month.  He sang with music and played the maraca and guitar.  And for art, he had some things that needed to get out. 

He started with a painting for his cousin who is not a baby anymore, but turned 7 today.  He wanted red, yellow, and her hair. 

This is her birthday painting.

He wanted to stick with the red, yellow, and orange theme for the whole time today.  And at the end, he told me why.  

 Work, yellow, orange, yellow, yellow, red and and color need my colors colors MY NONNI YOU ARE THE BEST.

See, Nonni loved yellow, orange, and red together.  Nonni loved Max's paintings.  And Max loved painting for Nonni.  He hasn't said much about her since she passed, but today when he said this after cranking out so many paintings after almost a month off, I think he was able to tell me exactly how he's been feeling about it all.  And needless to say, I wasn't very successful at keeping my composure I'd been working so hard at holding together all day through therapies.  He's a sweet boy.  And he has such a love for his Nonni.  I'm grateful he's able to have these therapies to express himself through this hard time.  I've not really known how he was going to handle it, and how much he is going to understand.  But, as usual, Max is showing us he knows far more than is expected, and he is going to teach us all how to move through the journey, and we'll be better for it.