We have not been on vacation with Max since 2008. When we landed back in Colorado after a year of traveling hither and yon, we were a bit broken to the idea of being able to travel again. On that last plane ride, I had nowhere to change Max's pants. The flight attendant told us to lay him across the toilet seat and change him. It broke me. When we moved back to Colorado, we haven't left as a family since.
This summer, I want to change that. I want to be able to see family. I want to take Max to see the places he's learning about. I want us to go on family trips before Abbey is off to college. So, we're taking this week as a sort of trial to see if we can do it.
Yesterday, as I was packing Max's supplies for the week and thought of my friend Elizabeth's "How we do it" series on her blog. She gives us snippets into her life with her adult daughter with epilepsy.
"How do you do it?" This is something families with children (and adult children) with significant needs hear all the time. Like, ALL the time. The answer is always some version of the same..."I don't know; we just do it."
So, yesterday as I started creating the piles and piles of Max's supplies to pack up and take on our vacation**, I thought I should take pictures and show a snippet of how we do it. And show myself that we CAN do it.
|A front view, everything to the left and the two large trash bags are for Max.|
|This load is just his food for the week. Well, food and medicine. 5 grocery bags. A cooler full, and another bag carrying his blender and measuring cups.|
**I keep telling Max it's a vacation to stay in a hotel for a week while we do construction in his bedroom and bathroom.