Thursday, April 7, 2011
Max's monthly supply delivery. Boxes, and boxes, and boxes of feeding supplies, syringes, gloves, and diapers!
Each first week of the month, this is dumped at our front door. It sits in the entry-way, and kicked around by me until Steve puts it away.
He has a system. I don't. It is just in my way, and I push it aside until it's out of sight.
It's been a busy week around here. We had some excitement yesterday, when our local NBC news station came out for an interview with us and Max. They are putting a story together about how he uses skype to interact with his classmates every day. It took the morning, and Max was super tired afterward!
In all the excitement, I forgot to get any photos. I did get this one, and if you look really closely, you can see the cameraman behind the student on the screen.
They went to the school to interview Max's teacher after they interviewed me and got video of Max visiting with his friends. They all did such a great job. I have to warn my mom though...there are snakes involved...yellow snakes with black stripes. It's what his friend wanted to talk about! Once the story airs, I hope to have a video to share.
After they got all the footage they needed, Max had his regular school with his teacher that comes to the house. He was a ROCKSTAR! He's learning shapes, and let us know his favorite is the rhombus. (They don't call it a diamond in school.) He got all his colors right, wrote a book report with his computer, and planted basil.
It was indeed a very busy day. And once his teacher left, this is how he sat...
...for three hours straight.
When he's sleeping that hard in the middle of the day, we know from experience to not wake him up, as it can trigger a seizure. So, I knew it was going to be a long night with his long afternoon nap.
He finally woke up and was pretty snuggly the rest of the evening.
But, we don't mind that. And, he actually slept fairly well last night.
Today, we got Max's trust opened and ready for donations. I'm really excited to get fundraisers set up so we can get the lift put in the van and I can get out with him by myself. With insurance and medicaid covering less and less these days, I can see a lot of uses for funds raised for his Special Needs Trust. It's money used only for him, for things insurance and medicaid won't pay for.
We then went to choose his new glasses. We got there prepared to get him yellow...except the only yellow choice they had would have looked lovely on a little girl, not a rough and tumble boy. So, he allowed us to get the blue, with a yellow strap, and a promise of yellow shoes. They're really cute, and we should have them in about 10 days.
We ended the day by planting his classroom cabbage in his yellow pot. All the kids in his class got a cabbage to plant. He's got quite a garden going now. The basil, corn, cucumbers, sunflowers, and beans. The cabbage is supposed to get huge...it will be pretty too!